"An invisible red thread connects those who are destined to meet regardless of time, place or circumstance. The thread may stretch or tangle, but it will never break."
Everytime we learn of a girl who has just been diagnosed with Rett syndrome, we are immediately taken back to our very own D-Day. The wound becomes fresh and our hearts just break all over again. All the worst-case scenarios run through your head. All the dreams you had for your child are shattered. Reading about Rett on the internet scares you. You desperately want to see a girl who is happy, who can walk, who can do things a typical child can do. You desperately want to see a photo of a family that looks like yours.
This site is dedicated to educate people about Rett syndrome. We are dedicated to raise Rett awareness. We want to provide resources for Illinois families who just want to make their daughter's life better. We want to help families redefine "normal." We are dedicated to showing you what our girls can do!
Our girls will end up teaching us more about the world than we could ever teach them.
Rett Thread is only a referral site. Proceed with caution before purchasing an item, trying a new therapy or any of the tips recommended by our users on this site. Rett Thread is not liable for unsatisfactory or harmful outcomes. Especially in referrals involving diet, supplements or therapy, please check with your doctor before proceeding.
“I thought I would have to teach my daughter about the world,
It turns out I have to teach the world about my daughter,
They see a girl who can not talk,
I see a miracle who doesn't need words.”